BIRD registry

Introduction

BIRD is building a national database to collect epidemiological data about IBD in Belgium and data on the use of biological therapies in the treatment of IBD. 

Therefore, we will be using the UR-CARE platform provided by ECCO (European Crohn´s and Colitis Organisation - ECCO - UR-CARE (ecco-ibd.eu)). 

The BIRD Registry will be used to perform retrospective studies and to obtain a comprehensive overview (summary reports) of IBD characteristics/demographics at a national level. As of January 2022, data of more than 1000 patients from 12 centers have already been entered in UR-CARE. In Q1 of 2022, 13 additional centers will collectively join the BIRD registry study. This includes all Belgium academic centers and most major non-academic hospitals in this country.  

Basic info to collect:
  • Patient
  • Disease characteristics
  • Endoscopy
  • Imaging
  • Conventional treatment
  • Immunomodulators
  • Biologics
  • Surgical treatments
  • Follow-up
  • Comorbidities / Complications
  • Pregnancy
  • Screening for infections / Vaccinations
  • Notes (trials, allergies, biological samples)

 

Data obtained from UR-CARE on Jan 31st 2022: